Research to inspire new ideas and promote the sustainable development of dementia care
JCCPA is at the forefront of promoting advanced development for dementia care. We believe that resources and research must be applied to understand the effectiveness of different care solutions and to support a sustained improvement in services in step with the needs of those with dementia. JCCPA’s research team applies its rich experience to conduct studies on dementia, with professionalism and focus, to achieve the goal of discovering innovative care models that can be implemented across industry based on forward-looking research results.
Since 2005, JCCPA has completed more than 30 surveys and research studies, exploring diverse topics such as: public misconceptions about dementia; relieving stress for dementia services’ frontline workers; the benefits of minimal constraints on people with dementia; how to avoid dementia patients living in the community getting lost; the efficacy of day care services for people with dementia; the efficacy of cognitive training, psychological education support by phone, acupuncture and others. The research findings supported the argument for promoting quality care services for people with dementia and shaped the future direction of service development.
Current Research
To facilitate people with dementia to receive training at home, JCCPA launches a 24-session online training program, aiming to delay the deterioration of cognitive function, and enhance life satisfaction and daily functioning for people with dementia. Pre- and post-program assessments will be conducted to evaluate the cognitive functioning, mental well-being, social functioning of people with dementia, and impact of supporting people with dementia.
JCCPA launches dementia screening and post-diagnostic support programme to support suspected with dementia and care partners. An evaluation is being conducted to measure the effectiveness of the programme in enhancing the psychological wellbeing of people with dementia and care partners. Participants will be assessed before and after the programme on the psychological wellbeing and cognitive functioning of people with dementia.
Younger onset dementia (people with dementia aged 65 or below) and their care partners demonstrate differences in family, work, financial, and clinical aspects compared to their older counterparts, yet there are inadequate support services. JCCPA has launched the first pilot project in Hong Kong to support people suspected or diagnosed with younger onset dementia and their care partners. An evaluation is being conducted to measure the effectiveness of the project in improving the psychological well-being of people with younger onset dementia and care partners, as well as alleviating the impact of supporting people with younger onset dementia. The evaluation targets two hundred people with younger onset dementia and their care partners, who will be assessed at baseline, project discharge, 3 months, and 6 months after the project. The assessment will gather data on psychological well-being, cognitive functioning, mobility, the impact of supporting people with younger onset dementia, and the effectiveness of the project.
Care partners may encounter multiple crises when supporting people with dementia, e.g., care partners do not know how to effectively handle the symptoms of dementia, or decide whether their relative need to go to a nursing home, these crises cause both physical and emotional stress to care partners. As such, JCCPA has implemented a consultation service provided by a healthcare professional to assist care partners in supporting people with dementia.
The evaluation study of this intervention showed that care partners reported emotional stress from the uncertainty of the diagnosis and progression of dementia as well as from the deteriorating health of people with dementia. Notably, many care partners did not have community support. To address care partners’ concerns, the healthcare professional offered information about dementia and future care planning, and practical and customised solutions in supporting people with dementia.
Care partners were satisfied with the consultation service. The service facilitated care partners to arrange a diagnostic consultation for their family members and led care partners to feel more motivated and knowledgeable to seek community support after the consultation.
Funded by The Hong Kong Club Charities Trust, JCCPA launches a variety of training and support to both the care partners and to local citizens on helping people with dementia in neighbourhood, and city-wide public education to facilitate the general public to understand more about dementia and how everyone in the community can do to help people with dementia in daily lives. The evaluation of this community project will focus on the change of behavior, attitude, condition, and knowledge of the participants after attending our training and programmes, and their satisfaction towards this project.
Research Report
Publication Chan, H. Y. L., Ho, F. K. Y., Chui, K. C. M., Wong, B. P. S., Chui, M. Y. P., Zhao, Y., ... & Kwok, T. C. Y. (2022). Evaluation of a multicomponent restraint reduction intervention in care homes. Collegian, 29(6), 837-842.
Conference Wong, B., Xiao, L., Cheng, T., Leung, P., Ho, F., & Kwok, T. (2024). Development of Culturally Sensitive Dementia Caregiving Psychoeducation Intervention: Views from Chinese Care Partners on iSupport Adaptation. Presented at the 36th Global Conference of Alzheimer’s Disease International, Krakow.
Publication Kwok T, Lam K, Yip A, Ho F. Knowledge of dementia among undergraduates in the health and social care professions in Hong Kong. Social Work in Mental Health. 2011;9(4):287-301.
Conference Lam, K, Yip, A, Kwok, T, Ho, F. Knowledge of Dementia Among Undergraduates in the Health and Social Care Professions in Hong Kong. Paper Presented at the 17th Annual Congress of Gerontology; November 2009; Hong Kong.
Publication Kwok T, Yuen K, Ho F, Chan W. Getting Lost in the Community: a Phone Survey on the Community‐dwelling Demented People in Hong Kong. International Journal of Geriatric Psychiatry. 2010;25(4):427-432.
Conference Yuen K, Kwok T, Ho F, Li J. Getting Lost in the Community: A Phone Survey on the Aged Population in Hong Kong. Oral presentation at the 15th Annual Congress of Gerontology; November 2007; Hong Kong.
Publication Kwok T, Chau WW, Yuen K, et al. Who Would Benefit from Memory Training? A Pilot Study Examining the Ceiling Effect of Concurrent Cognitive Stimulation. Clinical Interventions in Aging. 2011;6:83.
Publication Lee, EK-P, Wong, B, Chan, PHS, et al. Effectiveness of a mindfulness intervention for older adults to improve emotional well-being and cognitive function in a Chinese population: A randomized waitlist-controlled trial. Int J Geriatr Psychiatry. 2021; 1– 11.
Publication Wong, B., Kwok, T., Chui, K., Cheng, T., Ho, F., & Woo, J. (2021). The impact of dementia daycare service cessation due to COVID‐19 pandemic. International Journal Of Geriatric Psychiatry. doi: 10.1002/gps.5621
Publication Kwok T, Bai X, Kao H, Li J, Ho F. Cognitive Effects of Calligraphy Therapy for Older People: A Randomized Controlled Trial in Hong Kong. Clinical Interventions in Aging. 2011;6:269.
Conference Yip E, Yuen K, Li J, Ho F, Lam S, Kao S, Kwok T. Effectiveness of Calligraphy Groups in Retaining Cognitive Function During Ageing. Paper Presentation at the 16th Annual Congress of Gerontology; November 2008; Hong Kong.
Publication Chan W, Wong B, Kwok T, Ho F. Assessing Grief of Family Caregivers of People with Dementia: Validation of the Chinese Version of the Marwit–Meuser Caregiver Grief Inventory. Health & Social Work. 2017;42(3):151-158.
Publication Yan E, Wong A, Chan W, Kwok T. Misconceptions about Dementia and Its Implication for Willingness to Seek Treatment and Knowledge in Dementia Related Information. Hong Kong Practitioner. 2006;28(3):108-113.
Conference Yan E, Kwok T, Ho F, Li J. Misconception about Dementia and its Effects on Treatment Seeking Tendency. Paper presented at the 13th Annual Congress of Gerontology; November 2005; Hong Kong.
Publication Lam LC, Lee JS, Chung JC, Lau A, Woo J, Kwok TC. A Randomized Controlled Trial to Examine the Effectiveness of Case Management Model for Community Dwelling Older Persons with Mild Dementia in Hong Kong. International Journal of Geriatric Psychiatry.
Publication Kwok T, Twinn S, Yan E. The Attitudes of Chinese Family Caregivers of Older People with Dementia towards Life Sustaining Treatments. Journal of Advanced Nursing. 2007;58(3):256-262.
Publication Yan E, Kwok T, Lee D, Tang C. The Prevalence and Correlates of the Use of Restraint and Force on Hospitalised Older People. Journal of Nursing and Healthcare of Chronic Illness. 2009;1(2):147-155.
Conference Yan E, Kwok T, Ho F, Li J. Nurses' Attitudes towards Restraint-use among Dementia Elderly Patients. Oral presentation at the 14th Annual Congress of Gerontology; November 2006; Hong Kong.
Publication Yan E, Ho F, Kwok T, Tang C. Factors Associated with Life Satisfaction of Personal Care Workers Delivering Dementia Care in Day Care Centers. Social Work in Health Care. 2007;46(1):37-45.
Publication Kwok T, Wong A, Chan G, et al. Effectiveness of Cognitive Training for Chinese Elderly in Hong Kong. Clinical Interventions in Aging. 2013;8:213.
Conference Ting K, Yuen K, Chung E, Li J, Ho F, Kwok T. Effectiveness of Physical Exercise in the Ageing Population. Oral presentation at the 16th Annual Congress of Gerontology; November 2008; Hong Kong.
Publication Kwok T, Lam K, Yip A, Ho F. Knowledge of Dementia among Undergraduates in the Health and Social Care Professions in Hong Kong. Social Work in Mental Health. 2011;9(4):287-301.
Conference Lam K, Yip A, Kwok T, Ho, F. Knowledge of Dementia Among Undergraduates in the Health and Social Care Professions in Hong Kong. Paper Presented at the 17th Annual Congress of Gerontology; November 2009; Hong Kong.
Publication Kwok T, Ho D, Chan G, Ip I, Wong B, Ho F. Evaluation of Day Care Services for Demented Clients in Hong Kong. Asian J Gerontol Geriatr. 2014;9:5-9.
Conference Lam KC, Hui E, Yip A, Kwok T, Ho, F. Usage of Day Care Service by Persons with Dementia in Hong Kong. Poster presented at the 18th Annual Congress of Gerontology; 2010; Hong Kong.
Publication Kwok T, Young D, Yip A, Ho F. Effectiveness of Day Care Services for Dementia Patients and Their Caregivers. Asian J Gerontol Geriatr. 2013;8:9-15.
Conference Yip A, Kwok T, Ho F, Li J. The Effectiveness of Day Care for People with Dementia and Their Family Caregivers: The JCCPA Experience. Paper Presented at the 17th Annual Congress of Gerontology; November 2009; Hong Kong.
Publication Kwok T, Wong A, Chan G, et al. Effectiveness of Cognitive Training for Chinese Elderly in Hong Kong. Clinical Interventions in Aging. 2013;8:213.
Publication Bai X, Kwok T, Chan N, Ho F. Determinants of Job Satisfaction in Foreign Domestic Helpers Caring for People with Dementia in Hong Kong. Health & Social Care in the Community. 2013;21(5):472-479.
Publication Kwok T, Leung PC, Wing YK, et al. The Effectiveness of Acupuncture on the Sleep Quality of Elderly with Dementia: a Within-subjects Trial. Clinical Interventions in Aging. 2013;8:923.
Publication Kwok T, Wong B, Ip I, Chui K, Young D, Ho F. Telephone-delivered Psychoeducational Intervention for Hong Kong Chinese Dementia Caregivers: a Single-blinded Randomized Controlled Trial. Clinical Interventions in Aging. 2013;8:1191.
Publication Kwok T, Bai X, Li J, Ho F, Lee T. Effectiveness of Cognitive Training in Chinese Older People with Subjective Cognitive Complaints: a Randomized Placebo‐controlled Trial. International Journal of Geriatric Psychiatry. 2013;28(2):208-215.
Conference Kwok T, Yip A, Cheng S, Ho F. The Effects of Cognitive Training in Older Adults: A Randomized Controlled Trial. Presented at the 25th International Conference of Alzheimer's Disease International; March 2010; Thessaloniki, Greece.
Publication Bai X, Kwok T, Ip I, Woo J, Chui M, Ho F. Physical Restraint Use and Older Patients' Length of Hospital Stay. Health Psychology and Behavioral Medicine. 2014;2(1):160-170.
Kwok T, Bai X, Chui M, et al. Effect of Physical Restraint Reduction on Older Patients' Hospital Length of Stay. Journal of the American Medical Directors Association. 2012;13(7):645-650.
Publication Kwok T, Au A, Wong B, Ip I, Mak V, Ho F. Effectiveness of Online Cognitive Behavioral Therapy on Family Caregivers of People with Dementia. Clinical Interventions in Aging. 2014;9:631.
Publication Bai X, Ho D, Fung K, et al. Effectiveness of a Life Story Work Program on Older Adults with Intellectual Disabilities. Clinical Interventions in Aging. 2014;9:1865.
Publication Chan H, Ho F, Chui K, et al. Capacity Building for Dementia Care in Community Care Services: A Mixed Methods Approach. BMC Geriatrics. 2020;20:1-10.
Publication Young D, Ng P, Kwok T, et al. The Effects of an Expanded Cognitive Stimulation Therapy Model on the Improvement of Cognitive Ability of Elderly with Mild Stage Dementia Living in a Community—a Randomized Waitlist Controlled Trial. Aging & Mental Health. 2019;23(7):855-862.
Young D, Ng P, Cheng D, et al. Outcomes of Expanded Cognitive Stimulation Therapy Group for Mild-Stage Dementia: Four-Month Follow-Up. Research on Social Work Practice. 2019:1049731519859432.
Publication Wong OL, Kwong PS, Ho C, et al. Living With Dementia: An Exploratory Study of Caregiving in a Chinese Family Context. Social Work in Health Care. 2015;54(8):758-776.
Dementia Research In-focus
https://www.openaccessgovernment.org/prevent-in-hong-kong-dementia/75226/
https://www.openaccessgovernment.org/care-for-dementia-patients/82930/
https://www.openaccessgovernment.org/family-caregiver-training-in-dementia-care/114908/
https://www.openaccessgovernment.org/bluetooth-tracking-device-locate-people-dementia/159511/
https://www.openaccessgovernment.org/telemedicine-on-people-with-dementia-video-conferencing/165492/
https://www.openaccessgovernment.org/online-intervention-for-people-with-dementia-and-caregivers/174641/
https://www.openaccessgovernment.org/post-hospital-discharge-care-dementia/109612/
https://www.openaccessgovernment.org/post-diagnostic-support-program-for-people-with-dementia-in-hong-kong/117573/
https://www.openaccessgovernment.org/alzheimers-dementia-friendliness/119464/
https://www.openaccessgovernment.org/dementia-day-care-service-during-the-covid-19-pandemic/130117/
https://www.openaccessgovernment.org/bluetooth-tracking-device-promote-technology-aid-search-older-people-lost/152826/
https://www.openaccessgovernment.org/hong-kongs-rapidly-ageing-population/62430/
https://www.openaccessgovernment.org/dementia-care-centre-hong-kong/67011/
https://www.openaccessgovernment.org/train-the-trainer-approach/75147/
https://www.openaccessgovernment.org/vitamin-b12-and-brain-health/79990/
https://www.openaccessgovernment.org/cognitive-function-in-older-people/88208/
https://www.openaccessgovernment.org/detection-of-dementia/100236/
https://www.openaccessgovernment.org/identifying-dementia-mild-cognitive-impairment/106842/
https://www.openaccessgovernment.org/getting-lost/113762/
https://www.openaccessgovernment.org/older-adults-with-severe-dementia/119314/
https://www.openaccessgovernment.org/importance-dementia-day-care-services-during-covid-19/132296/
https://www.openaccessgovernment.org/article/a-bluetooth-tracking-device-to-aid-the-search-for-older-people-with-dementia-who-get-lost/145530/
https://www.openaccessgovernment.org/article/who-benefits-cognitive-effects-b-vitamins/148992/
https://www.openaccessgovernment.org/article/updating-services-for-people-with-younger-onset-dementia-and-their-caregivers/154836/
https://www.openaccessgovernment.org/article/e-learning-platform-for-dementia-caregivers/162091/
https://www.openaccessgovernment.org/article/reducing-restraint-on-residents-in-hong-kong-care-home-settings/168223/
研究會 Wong, B., Xiao, L., Cheng, T., Leung, P., Ho, F., & Kwok, T. (2024). Development of Culturally Sensitive Dementia Caregiving Psychoeducation Intervention: Views from Chinese Care Partners on iSupport Adaptation. Presented at the 36th Global Conference of Alzheimer’s Disease International, Krakow.
https://www.openaccessgovernment.org/younger-onset-dementia/125349/